'Rare Disease' trends
Domains containing the tag 'Rare Disease'
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- 1raredr.com
Rare Disease Report
Rare Disease Report is an independent voice for the rare disease community. We provide medical, business, regulatory, advocacy, and conference coverage related to orphan *** and rare diseases. Our mission is to bring the rare disease community closer together so that patients will be diagnosed and treated more efficiently.
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- 2hcplive.com
HCPLive - Clinical news for connected physicians
HCPLive is a clinical news and information portal, offering physicians specialty and disease-specific resources, conference coverage, and interviews.
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- 3phassociation.org
Pulmonary Hypertension ociation
Organization that connects PH patients, families, and medical professionals. PHA provides hope to the Pulmonary Hypertension community by improving patient lives and working towards a cure.
The Pulmonary Hypertension Association is the leading organization connecting PH patients, families, and medical professionals. PHA provides hope to the PH community by improving patient lives and working towards a cure.
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- 4courageousparentsnetwork.org
CPN | Courageous Parents Network
Empowering parents caring for children with serious illness through video, shared community, professional guidance, and palliative care. You are Not Alone.
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- 5ogt.com
Oxford Gene Technology (OGT) - The Molecular Genetics Company
Our integrated portfolio of NGS panels, FISH probes and arrays detect a comprehensive range of genetic variations in ***, constitutional cytogenetics, rare disease and reproductive health. Find out more by visiting our website.
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- 6progeriaresearch.org
The Progeria Research Foundation | Together, We Will Find the Cure!
Seeking treatments and the cure for Progeria and its aging related disorders.
Located in Peabody, MA, the Progeria Research Foundation was formed to discover the cause and find the cure for Progeria.
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- 7rarediseaseday.org
Rare Disease Day ® 2016
The main objective of Rare Disease Day 2016 is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
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- 8debra.org.uk
DEBRA UK - The butterfly skin charity
DEBRA is the national charity supporting individuals and families affected by Epidermolysis Bullosa (EB). We fund research to improve treatment and cure EB
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- 9alexionpharm.com
alexionpharm.com
Alexion is one of the world's leading rare disease companies focused on developing life-transforming therapies for patients with devastating and rare diseases. Find company and career information.
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- 10vsop.nl
VSOP - Patiëntenkoepel voor zeldzame en genetische aandoeningen
De VSOP is er voor alle Nederlanders met een zeldzame en/of genetische aandoening, dus ook de erfelijke, chromosomale en aangeboren aandoeningen.
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- 11phacanada.ca
PHA Canada :: AHTP Canada
The Pulmonary Hypertension Association of Canada is a Canadian registered charity organization serving those whose lives have been touched by PH.
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- 12inflamed-and-untamed.com
I'm Sara and this is Inflamed & Untamed! I'm so glad you stopped by my site and I hope you'll keep coming back. To learn more about me and the conditions I live with please visit the links in the...
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- 13unravel.bio
Unravel Biosciences
Target-agnostic AI drug prediction andcognitive and behavioral screening to accelerate and de-risk effective treatments for patients living with rare genetic diseases.
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- 14eyeonvision.org
Eye on Vision Foundation - Accelerating a cure for Visual Snow Syndrome
Raising Awareness,
Providing Support, Collaborating with Researchers
& Searching for
a Cure for Visual
Snow Syndrome, and its related symptoms.
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- 15aparito.com
Aparito: Wearable technology and mobile apps for disease monitoring
Aparito uses wearable technology and disease specific mobile apps to monitor patients outside of the hospital
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- 16patientsandpurpose.com
Patients & Purpose | Healthcare Advertising Agency
Discover a full-service *** advertising agency dedicated to patient communications and marketing health brands.
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- 17rarenote.io
내 질환 임상시험 정보부터 최신 연구 소식까지 가장 빠르게 만나 보세요.
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- 18humanscape.io
휴먼스케이프 | humanscape
디지털 헬스케어 기업 휴먼스케이프는 희귀난치성질환 치료 기회 확대를 돕는 레어노트, 임신·육아 플랫폼 마미톡, 관찰연구 특화 임상연구 솔루션 레어데이터를 운영 중입니다.
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- 19volv.global
Rare disease patient finding technology | Volv | Volv
Using the latest developments in AI our mission is to speed science, reduce the cost of healthcare, and so enhance the well-being for all.
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- 20rdhk.org
香港罕見疾病聯盟
香港罕見疾病聯盟(下稱「罕盟」)成立於2014年12月，是全港首個由跨類別罕見疾病病人和親屬組成，並得到有關專家學者支持的病人組織。我們代表患者和照顧者，致力透過與持份者協作，提升對罕病的認知，共同推動改善罕病政策和服務，令罕病患者的醫療、社會支援、教育、生活等各項基本權利，與其他所有市民一樣得到尊重和保障。
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- 21eurenomics.eu
EURenOmics - improving the lives of those with rare kidney disease
EURenOmics aims to predict the disease course, develop novel tools for more accurate diagnoses and new and better therapies for rare kidney diseases.
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- 22sanofigenzyme.com
Our Medicines | Sanofi
Discover Sanofi’s commitment to advancing healthcare through innovative medicines across various specialty and general medicine focus areas.
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- 23alcustomtees.com
Home ALCustomTees
AL Custom Tees offer a broad range of Awareness merchandise for men, women, babies & children!
We focus our line of awareness merchandise on Childhood ***, Leukaemia, Feeding Tube, Rare Disease and Noonan Syndrome Awareness, however, if you have a cause that you are passionate about that we don't stock, please don't hesitate to contact us as we offer custom work and may be able to design something for you or add your own design to our products.
We hope that our line of Awareness merchandise will help you in your endeavour to raise awareness and help find a cure.
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- 24errantgene.com
Errant Gene The***utics - EGT :: Home
Errant Gene The***utics, LLC is a
bio company dedicated to the development of treatments for
life-threatening rare & orphan diseases. EGT's lead product candidates
target thal emia and refractory prostate .
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- 254mrcp.com
4mrcp.com
4mrcp.com
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- 26mdnetguide.com
HCPLive - Clinical news for connected physicians
HCPLive is a clinical news and information portal, offering physicians specialty and disease-specific resources, conference coverage, and interviews.
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- 27volv.cloud
Rare disease patient finding technology | Volv | Volv
Using the latest developments in AI our mission is to speed science, reduce the cost of healthcare, and so enhance the well-being for all.
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- 28judi-gacor-hari-ini.click
ARENA288: ID WSO SLOT GACOR PASTI MAXWIN TERBARU 2023 PRAGMATIC PLAY
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- 29michelleritter.club
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- 30netsos.org
NetsOs - Deutsche Gesellschaft für Osteologie e.V.
Netzwerk seltene Osteopathien. Verbesserung der klinischen Versorgung, der Forschung und der Netzwerkbildung im Bereich seltener Knochenerkrankungen in Deutschland, Österreich und der Schweiz.
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